Nov 20 - I’m thankful this week is a 4 day work week because this
week is full of appointments, 6 appointments to be exact. Yesterday morning I had a bone scan because
my hip had been hurting. The pain was
due to something that happened before cancer and chemo but Dr Barnhill wanted
me to get it checked. The bone scan came
back with good results – nothing to cause concern and no additional tests
necessary.
Then in the afternoon Bobby and I went and met with Dr.
Sullivan, the surgeon who will do my reconstructive surgery (that’s 2 appointments
for Monday). Based on conversations with
women who have been through this before and conversations and recommendations from
doctors I’ve decided to do a double mastectomy with tissue reconstruction. Dr Jones, the surgeon who did my biopsy and
inserted my chemo port, will do the mastectomy.
At the same time, Dr. Sullivan will “harvest the abdomen” (tell me that
doesn’t sound strange) meaning he’ll be getting my tummy tissue ready to move
to my breasts. I will not get implants,
Dr. Sullivan will use my tissue to reconstruct both of my breasts. This produces
a more natural look and I won’t have foreign substances in my body. This is an inpatient procedure but I’ll only
be in the hospital for 3-4 nights (I’ve requested 4 nights from the get go,
give me all the help and care I can get!).
I won’t be able to lift anything over 10lbs for 4 weeks which means I
won’t be able to lift Micah and I will have to sleep upright or on my back for
4 weeks.
Today I had my lab work and check up with Dr.
Barnhill. Everything looks good. It took her a little longer than last time to
find the tumor, which she said she’s not going to call a mass anymore but I can’t
remember what she’s calling it. She is
pleased with my progress and my reaction, or lack thereof, to chemo. I don’t think it’s very common for people to not
be sick or have many negative symptoms. Tomorrow
around 2pm CST I will be half way through my chemo plan.
After I met with Dr. Barnhill I had my psychotherapy
appointment with Dr. Weiss (that’s 2 appointments today). I really like her and I think she’s going to
help me a lot, not just to deal with cancer but become a better me.
Tomorrow is Chemo which seems to be an all day
affair. I get Thursday off, as do my
nurses and doctors. Then Friday I go
back for my white blood cell shot. And there we go – 6 appointments in 4 days.
I suppose you might wonder why I’ve chosen the double
mastectomy route if my tumor has shrunk so much. Based on conversations with breast cancer
survivors who only had the lump removed or who had a single mastectomy, they
all wish they had a double mastectomy so they wouldn’t have to worry about
breast cancer coming back. And conversations with my surgeon who said the
surgeons at the Center for Restorative Breast Surgery are the best in the world
and I should take advantage of them being right here in my city. And because I’m young (I could have 40+ years
to live which seems like a really long time!) and have a young son, why worry
about breast cancer for the rest of my life?
So, after serious consideration this is the decision we’ve made.
Way to go, Kristyn. I'm proud of you not only for your strength and determination, but also because you've put so much thought into the best plan and are able to describe what's going on. It's so hard for people to share complex medical issues, and their decisions about those issues, with people--especially in writing. Brava for figuring this all out and being able to share it with us so clearly.
ReplyDeleteI love hearing the good news you're getting and can't wait to hear more. You're always on my mind. xoxo
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