Thursday, February 26, 2015

Feb 2015 update

If you ask me how I’m doing, I’ll tell you I’m doing really well.  Cancer-wise I’m good.  Hip, wrist and memory wise I could use some help!

Monday, my Oncologist gave me the thumbs up and said she’d see me in 3 months.  That’s fantastic!  Although I thought it was my 6-month checkup which reiterates to me that my memory is still not HERE. 
Three weeks ago I went in for my 6 month checkup with my OB/GYN, which I thought I needed because I had an abnormal pap awhile ago due to the chemo I was on (or some other drug, I’d have to look through my blog to get the details).  I signed in, waited a few minutes and the receptionist said I didn’t have an appointment.  I personally had the appointment entered in my phone calendar and my paper calendar that I carry around (a good way to double check myself, I thought).  But I wasn’t upset, we just scheduled an appointment for the following week.  When I went back last week, signed in and was called back to get my bp, weight, and a urine sample the nurse asked me why I was there.  Oh geez… here we go again I thought!  She looked through my chart and found that I’d already had 2 normal pap smears so I didn’t need to be there.  We scheduled my annual exam for August.  FYI  When I had an abnormal pap due to the medications I was on I needed to get checked every 6 months until I had two normal paps.

I was supposed to have Physical Therapy today because I had a hip Bursectomy done in January.  I have my 6-week post op visit with my surgeon on Wednesday (I think???) so this appointment was an evaluation before I see my surgeon.  My phone and paper calendars show the appointment was scheduled at 4pm.  Apparently the appointment was actually 2pm and I missed it.  I have so many checks and balances for my appointments, I don’t see how I can keep messing up!  I wonder if I have too many checks and balances…  Anyway, I’d been having pain in my right hip for a few years.  PT didn’t help my hip.  Time didn’t help. I guess the steroid shots helped, or at least that’s what my surgeons notes say.  The surgeon said to me “so the steroid shot helped.” I thought he was asking me so I answered and told him it didn’t.  He looked at me and said he wouldn’t have entered that note if I hadn’t told him that.  I laughed and said, “well then, I guess it did help.”   And then we talked about Chemo Brain. Whatever…  So on January 14th I had a right hip bursectomy.  I think it’s helped but I’m also still sore from the surgery so I guess I can’t say for sure.
I’m at 6 weeks post op from the hip bursectomy and am able to schedule a carpal tunnel release on my right hand.  I’m hoping to have this done in the next week or two.  The same orthopedic surgeon who did the hip surgery will perform the surgery.  When I told Micah’s pediatrician who performed the hip surgery he said, “Ooooh the surgeon to the athletes.”  I like that :) 

Which brings me to my family.  Micah turned 4 on January 25th. We had a party with his friends and he had a blast!  Bobby’s birthday was February 2nd and my mom watched Micah so we could spend the night in the French Quarter.  My moms birthday was January 17th but it kind of got skimmed over because of my surgery on the 15th.  She even had to pick up her own birthday cake but I think I paid J  Helena, my mom and I went shopping last weekend for Helena’s prom dress.  We found one and she looks beautiful in it!  Hard to believe we have a teenager, probably because she is nothing like I was at 17! 

Playing with Alex at Micah's bday party.
Micah is taller than 91% of 4 yr olds.
I know he gets that from me!!

Micah is 4!!!

Nana and Micah at a parade.
Garrett and Micah
Me and Renee
(my friend and Garrett's mom)

Endymion is one of our favorite parades.
This is to looking the left of us.

On the balcony
Looking to the right.

Johnny Giavotella and me. He just got traded to the Angels
which happens to be my favorite team.  Bobby took this picture.
  If I were single I  might've done my hair a little differently :)

Another Endymion party.
A homemade float for the kids!
On the float!!

Tuesday, December 2, 2014

December 2, 2014

I have an appointment with Dr Jones in about 2 hours.  I’m expecting everything to be fine considering I had a good report from Dr Barnhill last week and met with Dr Sullivan yesterday.  Dr Jones is my breast surgeon who does the ultra sounds and biopsies and did my mastectomy in 2013.  Dr Barnhill is my Oncologist and Dr. Sullivan is my surgeon who does my reconstruction surgeries. 

I have surgery on Thursday, 12/4, with Dr Sullivan.  He’ll be doing my reconstruction/revision surgery and removing my port.  I am currently marked up with blue ink and was sent home with a blue Magic Marker to make sure a few marks don’t fade away before Thursday.  As usual, I am looking forward to this surgery and hospital stay.  Right now I’m scheduled to be in one night but I’ll see if I can push for an extra night since I might never be back.

While waiting for my pre-op appointments I ran into a very frightened, nervous woman.  She was diagnosed about 2 weeks ago and was meeting with Dr Sullivan for the first time.  I tried everything I could to help her feel comfortable knowing that she was in The Best hands at the Best Hospital she could be at.  Luckily, I know she’ll realize this someday. I just wish I could have helped her realize it now,  before  her surgery.
I’m so thankful I’ve been able to remain positive throughout my breast cancer journey and hope I can continue to be positive.  I continue to be thankful for my family and friends who have encouraged me and supported me.  Things happen for a reason and while we might not understand the reasons or the timing, God has a plan and I’m thankful for that.

I’ve heard from a few of you regarding the You Night event in March.  The tickets are still $100 and the organizers ask for money now so they can begin organizing the event.  They are not a big organization with accounts full of money so the ticket sales help get the event going.  I am so excited about this event!  Everyone is meeting this Thursday to watch video from the October event where we kicked off NOLA Fashion Week.  Since I won’t be able to attend (stuck in a hospital bed under lots of pain meds) some of the women plan to visit me in the hospital.  Just the thought of them wanting to come by is good enough for me.  I barely know these women but we all support each other in any way we can!

Please let me know ASAP if you’re interested in getting tickets now for $100.  Tickets will still be available for $125 through the night of the event.  Again, they ask for the models/cancer survivor to sell 10 advance tickets each so the organizers have a budget to work with.  The ticket sales go towards the event and empowering the model/survivors.  The tickets include food, drinks, runway show and party. Let me know if you have any questions. 

Here’s the link to more info about the New Orleans event!new-orleans-2015/c1y3t  The picture of me… well… I did send them others but oh well!  And remember, if you send me a check for $100 you don’t have to pay the extra handling fee.

My moms car belongs in Louisiana!

Taking care of business.

Bobby and me on our anniversary.  

Tuesday, November 18, 2014

I'm going to be a runway model!

I just received the deadline for selling my 10 tickets to the fashion show that I'll be walking in as a Breast Cancer Survivor.  I haven't officially sold any tickets!  I know people want to go and I know how hard it is to fork out $100 right before Christmas for something that isn't happening for another 4 months.  
I mean, who knows where you'll be on March 24th, right? What about at the Board of Trade in New Orleans, celebrating your friends Triumphant Battle Against Breast Cancer! What about being with other friends and family at the Board of Trade in New Orleans celebrating your friends Two-Time-Triumphant Battle against Breast Cancer!!! 
Based on the smiles and excitement of the women who participated in the North Shore You Night event, this is  one amazing night. I'm so excited to be a part of it!
Tickets are $100 for a cocktail party from 5:30-10, including open bar, passed foods and desserts, raffle prizes and door prizes and a RUNWAY SHOW.  Corporate sponsorships are available also with packages ranging from $500-$20,000.
After December 4th the individual tickets go up to  $125. I'm trying to figure out away to purchase the tickets now and let you pay later so if you are interested please let me know ASAP. Or if you think your company would be interested in a sponsorship role let me know and I'll get you in touch with the right people.

I have my checkup with my Oncologist next week, a checkup with my Breast Surgeon the following week and my (hopefully) last surgery is December 4th.  They will be removing my port and doing some reconstruction to fix my left breast that was 'messed up' when I had the infection in July.  Please keep my in your thoughts and prayers.  

Tuesday, November 4, 2014

You Night New Orleans 2015

As I’ve mentioned before, I will be walking the runway at the You Night New Orleans 2015 on March 24th, 2015.  I am really excited about this opportunity!  The women who put this together have done a really great thing to empower cancer survivors. 

The event will be at the Board of Trade in downtown New Orleans.  It is a cocktail party with an open bar and passed food and desserts
Here is the link with the event info:!ticketsandsponsors/c1hbz

You can order tickets through eventbrite but there is a processing fee.  If you order through me (by giving me a check for $100 this month) there is no processing fee.  There are also corporate sponsorship packages if you’re interested.
The link for info is:!ticketsandsponsors/c1hbz

This is the event info page if you don’t want to click on the link:

October In Review

Practicing my pose at the Windsor Court
Wow, October was a crazy month!  Lots of fun times with family and friends.  And now, 4 days into November I have a cold or sinus infection, or something and I think it’s a sign that I did too much. That’s ok, I wouldn’t change a thing!
To catch you up on a few of the events listed in my last post:
On October 2nd I picked up a few copies of Inside New Orleans at the launch party at Saks 5th Ave.  I’m even in a few pictures!  
Magazine cover

Group shot

On October 16th I attended the NOLA 2015 You Night New Orleans Launch Party at Fulton Square.  This event was to introduce the 2015 New Orleans models for the March 24th, 2015 YOUNIGHT Fashion Show.  This event is going to be soooo cool!  We wear 3 outfits from local boutiques, get our hair and makeup done and have formal practices where we’ll become trained models.  I’ve been asked to sell 10 tickets (which is one table) for the event.  The tickets are $100 each, if ordered through me.  I’d love to sell more than 10 tickets and show New Orleans how a Pacific Northwest girl can rock this!!!  I’m going to do a separate post about this.
 On October 17th I picked up my friend Danielle at the airport and we ran home to get all fancied up for the Pink Gala at the Windsor Court Hotel.  I walked the runway at this event also, dressed in an expensive BCBG outfit.
Judy, me, Bobby and Danielle

my million dollar outfit
View from the patio

My friend Dawn and me

Dawn interviewed me for  If you haven't watched the video yet you should!  My story is the 3rd story on Epsiode 3.
The local Race for the Cure was on October 25th.  We were a little unorganized this year and I apologize to anyone looking for us at The Tree we meet at.  I couldn’t find it!  I promise to be more organized next year!
Today I am one month away from my (hopefully) final breast cancer related surgery.  Sometimes I forget that I had breast cancer.  For instance, when I fill out paper work and am asked about my health.  What do I say?  I guess it could give someone a good laugh if I say I’m in good health and then they find out the truth.  Or maybe I am in good health?  I don’t spend too much time thinking about this but sometimes I’m in shock of what I’ve gone through.
My Radiation Oncologist released me from his care although he assured me that he’s always available to me.  Besides, I have several other doctors I see on a regular basis so he’s confident I’m taking care of and doesn’t want to add another doctor appointment to my calendar.  This will be helpful when I go back to work!  My next appointment is with my Breast Surgeon on November 21st when I expect to hear him say it is good to see me and he’ll see me again in 3 months.

Wednesday, October 1, 2014

I'm on the verge of one incredible month

As we're all aware, October is Breast Cancer Awareness month. 

Now, October has a new-new meaning to me.  This October I am celebrating Breast Cancer Awareness month as a Survivor.  October 14th marks my official One Year Survivor mark.  It’s kind of hard to believe that I’ve been cancer free for one year considering it’s only been 5 months since my last chemo, 2 months since my last cancer-related surgery and I still have at least 2 surgeries remaining.  But, technically, my cancer was surgically removed from my body on October 14th, 2013.  I believe a celebration is in store (I love celebrations!!).
October 2nd I’ll be attending the Launch Party for Inside New Orleans magazine at SAKS Fifth Avenue.  Along with 23 other survivors, I will be featured in the first edition of Inside New Orleans magazine that will be on newsstands October 1st and delivered to 30,000 recipients in the area.    

October 16th I will be attending the NOLA 2015 You Night New Orleans Launch Party.  A group of women put together an event on the North Shore in 2013 to honor and empower survivors.  Last year this event had 500-600 people.  This year, the North Shore event is October 9th and the New Orleans event will be in March 2015.  I will be walking the runway at the You Night NOLA event in March.  The launch party on Oct 16th is at Fulton Square, sponsored by Harrah’s Casino and open to the public. 
October 17th is still Court’s Birthday but this year I, among other survivors, am being honored at The Pink Gala.  I will be walking the runway as a Survivor, styled by BCBG.   This event is put on by the New Orleans Living Magazine and Television. 
Our team is slowly growing for Race for the Cure on October 26th.  There’s still time to sign up!  I think this is the right link:

My appointment with my Oncologist a few weeks ago ended up being uneventful.  She seems to think things are going well for me and ok’d the removal of my port.  The plan is to remove it on December 4th when I have another reconstruction procedure at the fancy hospital.  I almost had to get it removed sooner because when I went to get my port flushed there was something wrong with it.  Luckily we don’t need to use it anymore so no tests were done to find out what is wrong with it.  All the more reason to get it taken out.  Luckily it can wait until December and I don’t need another surgery.

Disclaimer: I am no model nor do I intend to become one.  (I mean, unless someone wanted to pay me lots of money, give me a uacht, give me a bigger house with a house keeper, chef, driver, dog walker… J  These events are honoring Survivors, I was not picked by looks or personality but I know I score high in both areas. Ha! 

Wednesday, September 3, 2014

Race for the Cure 2014

Race for the Cure is coming up and it'll be the 3rd year for our team Kickin’ it Pink to participate. I just registered Micah and myself so our team is going strong with 2 participants :) If you plan to do the race and don’t have another team to sign up with please join our team! We don’t really do anything special but we could!

Tomorrow morning I have my 3 month checkup with my Oncologist, Dr Barnhill. I’m not expecting much excitement but I guess you never know. From what I understand, this is an appointment to discuss any new symptoms I have and to figure out what should be done about them. The only way we can tell that something is wrong is if I have a symptom that indicates further testing is needed.

As far as I can tell I don’t have any symptoms needing further testing. I will tell Dr Barnhill that I was having headaches but I think they were from clenching my jaw while I slept. My right wrist hurts but I think that’s from being on my phone too much (kind of embarrassing!) I had an appointment with my OB/GYN a few weeks ago and my test results were negative. I had my checkup with the surgeon who does the biopsies and he had no concerns. I’ve been seeing my surgeon who does my reconstruction surgeries on a regular basis since July 17th and he doesn’t seem to have concerns besides how I’m healing from my surgeries. So I think I’m ok. I hope I’m ok. I'll let you know how the appointment goes.

Our 2012 team

We have lots of fun!

2013 was a little colder

Cristie will be missed this year

California Kickin' It Pink team members